Things are moving on again.
I've had my last dose of chemotherapy and I'm currently back
in the isolation room waiting for my body to recover. And when I'm good to go
from here, that's me done with leukaemia. I can walk away, free of the
disease. Hey - take a deep breath, and say that again: "No more leukaemia!"
Aaaah!
Then back to the here and now. I still need to go on with the
transplant to make sure I don't have a relapse so we're progressing on that
front too. About 10 days ago while I was in for a check-up I was
told that everything is ready to go as soon as I stick the cash on
the table.
HK treatment is covered but I need put have $$$
up front to cover contacting the potential donors, doing the various detailed
blood tests, hospital stay and treatment of the American donor, and a
courier to transport the blood from the US to here. Bloody hell,
that makes me mad! I've been hanging on waiting to hear how much the
operation is going to cost (the figures keep jumping around), waiting to hear
how long it's all going to take, and when I'm going to need to pay.
Suddenly they up the figure by 25% and tell me
they're going to stop everything dead in the water because I don't have cash
money right now! Why didn't they tell me that's how it works a month
or two ago and let me get things moving? I've been dawdling under the impression
that as long as I agree to pay things would progress and I'd be presented with a
bill somewhere further along the line. I'm already preparing
to sell my flat in the UK to raise the money, and can borrow what I need to
tide me over in the meantime - but these things take time.
And then of course I started giving myself a hard
time: Sell the flat?- its my only asset, where are we going to live?
how are we going to support ourselves while I recover? etc etc.
Then just when I needed to see it there was an appeal in
the paper for donations to treat a 7 year old Indian boy with leukaemia.
He's seven years old, and treatment in the US will cost about eight times the
amount that I have to pay. That helps me get things back in
perspective.
Why am I so worried? It's only money. I am
getting well. I can raise what I need for the treatment. Where's the
problem?
