Nothing major has
happened physically in the past week - but I've been making a few subtle
adjustments mentally.
A couple of odd
things from my conversation with Darren a couple of weeks ago stuck in my
mind. He said that still when he presses a lift button in a public place
he'll use a knuckle or a pen rather than a finger tip. Pushing open a door
he'll press a place above or below the 'sweet spot' where 90% of people
push. I understand that - I do similar things. Habits like that reduce
the chances of picking up a random infection, and every little is worth
while.
But he's six years
post-transplant, while I'm just over 6 months - why is he still
worried?
Towards the end of
last year when I first got home after the transplant and weeks in the
isolation room I was hyper-aware of bacteria, viruses, and potential contact
with them. If I touched a railing or door handle in public at
times my awareness of it was almost like a big red buzzing cartoon sign
("unclean, unclean") - until I could do the ritual handwash, or wipe with an
alcohol swab. But that mindset faded over the months as I grew stronger
and found I can function without picking up every bug that passes me on the
breeze.
Because I've had what the
doctors call an 'uneventful course' in the months since September I had fallen
into thinking of the leukaemia as something rather like a bad 'flu, or a broken
leg. Sure it was serious, but I've had a mental image of a time in the
future when I would be fully recovered. Like a broken limb, or having your
tonsils out, it would be done, dusted and completely in the past.
I need to build the
habits that will allow me to live comfortably with this new reality. My body
will never be something I can just rely on to the same extent as I did in the
past (I suppose that's true for all of us as we get older, but in my case it's a
little more solid, a little more sudden...)
So over the past
weeks I've started paying more conscious attention to how I interact with the
the world again. Walking to a ferry I note people who cough or sneeze on
the path or in the queue, and I'll then consciously put distance between us when
I pick a seat. I'll still buy a coffee - but if the milk's been refills in the
same jug since this morning, I'll have it black thanks, or, better still, I'll change
my mind and have a bottle of water.
It's not the near
paranoia I had when I first came home, but I'm working on a heightened sense of
awareness of my surroundings. It may not actually save my life, or
keep me out of hospital, but it can't hurt.